Saturday, July 25, 2009

DISCHARGE PLANNED FOR TUES JULY 28TH




We are on track to be going home on Tuesday,YEAH!! We are on day 40 of 43.

Abigail will be 110 days old on Tuesday... she will have spent 87 of those 110 days in the hospital and only 23 at home.

Sorry to not update the blog more frequently, but not too much to say. Things are going well. Abigail weighs 10 lb 5 oz as of this AM. She is still having difficulties eating well. One day is good, the next not so great. We gain weight, then we lose. WE get in trouble frequently for that. But I sure do try hard everyday to make her eat.
Health update: So this week... Abigail had a cardiac echo: results were fine. She had another doppler/ ultrasound of her blood clot. 3 months of lovenox shots twice a day and the blood clot is still there, no bigger, no smaller. So they plan to continue the Lovenox for another month and then re-evaluate. They say that sometimes the clots never go away.
We plan to go home on the Lovenox twice a day, Enalapril (blood pressure med) twice a day, Asprin once a day, Vitamin once a day, and Corn Oil ( yeah, gross like veggie oil, for extra calories) once a day.
Plan for next surgery: No specific day planned, they " think" it will be sometime around 5 or 6 months old. It just depends on her. We hope to get a little time at home.
Family report: I have gone back to work as much as I can, hard to juggle sitters, taking and picking up Jack, Nathan's work (Financial Advisor: for any of you people that NEED "life insurance, college savings plans or your kids, help with investments... he is only one phone call away!!)
Jackson is doing great. He has spent many nights and days with me at the hospital. He has done very well with our stay here. He thinks the hospital is the coolest place. He sure does love his baby sister. He is very caring. He is currently working on his potty training skills.
Thanks: I have to say thank you to everyone who has helped us so much! The people that have given their time to help with Jack, sit with Abigail, bring me food/ snacks/ dinner, provide me company at hospital, help around my house, gave donations, sent flowers, or just offered their help in whatever way we need. You know who you are, and I'll never forget these acts of kindness. I owe so many of you! Wouldn't be were we are now (especially with a smile on my face) if it wasn't for all of you AWESOME friends and family!! Thanks a million!!