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Things are going good for us at home right now... been home for 3 weeks now! Yeah!! Abigail is eating better, gaining weight (11 lbs 6 oz).
Today she had a follow up ultrasound for her blood clot, no news on that yet. Have appt next week for results, along with the FEARED lovenox level. I expect the blood clot to still be there. There is a chance it will never go away.
TOMORROW... another BIG day for Abigail. She is having her 2nd Cardiac Cath done. This is required before the 2nd surgery. I think they measure the pressures in the heart and just look at the anatomy of the heart to be well prepared for surgery #2. Still no plans for that at this point, don't really know what will be the deciding factor. The bigger she is the better, so a few more months at home would be great!!
Thanks again to all of the Abigail supporters out there. Glad to have you in our lives!!
Hello! I just came across your blog through another blog. My son is 7 months old and has HRHS. He has already undergone his first two surgeries and a heart cath. Thankfully we are blessed and he is doing great at the moment. I read that Abigail has a blood clot. Cain does as well. And we also have to give him twice daily shots of Lovenox. Cain has an ultrasound in September and I'm praying it is gone. I will also pray that Abigail's is gone as well.
ReplyDeleteTake care,
Catherine Clinkscales